Wednesday, May 19, 2010

Relief !!!!!!!

some of you may know that my son has a rare form of epilepsy and some of you may know that we were waiting for test results for Batten's disease which is a regressive neurological disease and ultimatly leads to death by the age of 10 years.
info here http://en.wikipedia.org/wiki/Batten_disease
the waiting has been dreadful and not knowing really is horrible.
today i turned on my old phone needless to say there was a few (120) txt messages and 4 voicemails. One of them was from the hospital.
the nurse called with the results of the test so i hurried to phone her back.. she had called 3 weeks ago


I nervously waited for her to answer the phone, and i explained that my phone has been out of action for a few weeks and she paused and asked if i wanted the news. i said of course.
she said He does NOT have Batten's Disease, i thanked her for giving me such great news and apologised for the delay returning her message and i hung up.

then i ran in to my front room and yelled Yessssssssssssssssssssssssssssss at the top of my voice !
this news could not have come at a better time and couldn't have been any better. OK so Sam still has the epilepsy but thats controllable with the right meds. trial and error until we get the right med and right dosage.

but this news is sooo good i know that later when i'm alone i will shed some happy tears.

now i have 2 reasons to be very very happy

and finally i am smiling like this :)))))))))))))))))))

2 comments:

Unknown said...

Yay! Yay! Yay! *happy dance*

What a relief! I bet you feel amazing!

Awesome news!

duvetdiva said...

Over the moon... It will sink in tomorrow probably.
but i have never felt happier.

Thanks Mandy :)